Should patients be allowed easy online access to the notes that their physicians write about them?
Absolutely.
Legally we all have the right to obtain or view copies of our own medical records. However, even with the promulgation of the electronic medical record (EMR), patients in most health systems still do not have online access to the clinical notes that their doctors write about them.
Today an article in the Wall Street Journal discussed a study that is currently underway called the OpenNotes project. The one-year study will evaluate what happens when 25,000 patients have access to their own health records. Their primary care physicians will also be participants.
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While correctional health care workers may be sued for malpractice, the most common type of lawsuit filed by inmates about health care in the U.S. involves allegations of “deliberate indifference.”
According to US Legal, Inc., “deliberate indifference” is “the conscious or reckless disregard of the consequences of one’s acts or omissions.” To be found guilty of deliberate indifference, prison employees must know that they are creating a substantial risk of bodily harm. So, knowingly ignoring an inmate’s serious medical complaint would be one possible example of this concept. Deliberate indifference violates the inmate’s Eighth Amendment right that prohibits cruel or unusual punishment.
What can you do both to minimize your risk of having lawsuits or other complaints filed against you, and increase the odds that any frivolous complaints that do get filed are dismissed as expediently as possible? Here are a few ideas. This list is by no means comprehensive.
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Doctors, nurses, and other health care professionals often find themselves in situations where they must speak up for their patients. Typically such patients either do not realize what they need, do not know how to ask for what they need, or they lack the authority to obtain what they need.
The circumstances and challenges of advocating for patients vary significantly depending on the practice setting. I’ve previously written about how practicing in correctional settings presents unique challenges. Essentially the main challenge in any jail or prison, regardless of how “treatment-friendly” it may be, is that a correctional facility exists for the primary mission of security, not treatment.
So, if you’re a health care professional in corrections and you have a patient who needs your voice, how can you go about being an effective advocate?
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PATIENT:
adjective: bearing pains or trials calmly or without complaint
noun: an individual awaiting or under medical care and treatment
from Merriam-Webster Online
Photo by frances 1972
But, like it or not, the world is filled with situations where we commonly have to do so. Sometimes the waits are excusable and even predictable, and other times they are not. At most doctors’ offices, one can expect to wait to varying degrees beyond their scheduled appointment time. It’s predictable. But is it excusable?
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It’s probably happened to all health care professionals at some point: Patients, especially those considered “difficult” for some reason, fail to improve despite our best efforts. Eventually we become frustrated enough that we then blame them for their lack of progress.
There are endless possible scenarios where this might occur:
- A depressed patient, who transiently appears to have a personality disorder because of her inadequately treated depression, is not progressing in psychotherapy and has not responded to two different medication trials.
- An elderly man bounces back for readmission to the hospital for a CHF exacerbation. He arrives in the ER with a pack of cigarettes in his shirt pocket.
- A morbidly obese woman continues to have poor control of serum glucose, blood pressure, and lipids despite aggressive pharmacotherapy. Yet the patient has lost no weight despite being counseled for years about the need to do so.
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